About MyEyeSite

A feasibility study and prototype for a patient-owned repository of rare-disease clinical and genetic data using inherited retinal disease as a paradigm

This project is a collaboration between Moorfields Eye Hospital, Loft Digital, and UCL Institute of Ophthalmology, funded by UK Research and Innovation’s Industrial Strategy Challenge Fund. Team members are:


Prof Andrew Webster, Moorfields Eye Hospital, UCL Institute of Ophthalmology. Consultant ophthalmologist specialising in inherited eye disease and medical retina.

Nick Nettleton, Loft Digital. CEO.

Dr Rose Gilbert, Moorfields Eye Hospital. Clinical fellow in ophthalmology.

Dr Nikolas Pontikos, Moorfields Eye Hospital, UCL Institute of Ophthalmology. Research fellow.

Dr Rod Young, Moorfields Eye Hospital, UCL Institute of Ophthalmology. Research associate.

Dr Gavin Arno, Moorfields Eye Hospital, UCL Institute of Ophthalmology. Research fellow.

Academic/NHS partners: UCL

Industry partners: Loft Digital

Lead organisation: Moorfields – Andrew Webster